H.E.D.

I know it has been a while but I thought I would catch everyone up on the last few months around our house. As you all know we've had one sick kid on our hands. I'm proud to announce we have a HEALTHY baby today. We fortunately were recommended to an amazing doctor (Dr. Kyle) who referred us to a specialist in the medical center (Dr. Bree). After our first visit to Dr. Bree's office she suspected Jackson had a genetic disorder called Hypohydrotic Ectodermal Dysplasia. After genetic testing and a long wait period, it has been confirmed that Jackson does have Ectodermal Dysplasia. I think we are glad to know that there is a reason our son has been sick. This basically means that Jackson was born without sweat glands so the main risk is he can over heat easily and his body temperatures are elevated often. There is no cure for HED. Visit www.nfed.org if you would like to learn more about this disorder. Jackson is our little blessing and he's a strong boy and we know he will be a little fighter as he grows up! :) Thanks to all of our family and friends for the continued support and prayers during this time! We appreciate each and every one of you.